Development of a patient decision aid for people with refractory

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Health Qual Life Outcomes. 2014; 12: 93.

PMCID: PMC4065088

Published online 2014 Jun 11. doi: 10.1186/1477-7525-12-93

Development of a patient decision aid for people with refractory angina: protocol for a three-phase pilot study Michael Hugh McGillion, 1,2 Sandra Lee Carroll, 1 Kelly Metcalfe, 2 Heather Mary Arthur, 1 Joseph Charles Victor, 2 Robert McKelvie, 1,3 Etienne Marc Jolicoeur, 4 Marie-Gabrielle Lessard, 4 James Stone, 5 Nelson Svorkdal, 6 John George Hanlon, 7 Ada Andrade, 7 Joel Niznick, 8 Louise Malysh, 9 William McDonald, 9 Bonnie Stevens, 2 Peter Coyte, 2 and Dawn Stacey 10 1 Faculty of Health Sciences, McMaster University, 1280 Main St. W, Hamilton ON, L8N 3Z5, Canada 2 University of Toronto, Toronto M5T 1P8 ON, Canada 3 General Division, Hamilton Health Sciences, 237 Barton Street East, Hamilton L8L, 2X2, ON, Canada 4 Montreal Heart Institute, 5000, Bélanger Street, Montréal H1T 1C8 Québec, Canada 5 Libin Cardiovascular Institute of Alberta, University of Calgary, C823, 1403 - 29th Street NW, Calgary T2N 2T9 AB, Canada 6 Royal Jubilee Hospital, 1952 Bay Street, Victoria V8R 1J8, BC, Canada 7 St. Michael’s Hospital, 30 Bond Street, Toronto M5B 1W8, ON, Canada 8 Ottawa Cardiovascular Centre, Bank Street Professional Centre, 502-1355 Bank Street, Ottawa K1H 8K7, Canada 9 St. Paul’s Hospital, 1081 Burrard Street, Vancouver V6Z 1Y6, BC, Canada 10 School of Nursing, University of Ottawa, 451 Smyth Road, Ottawa K1H 8M5, ON, Canada Corresponding author. Michael Hugh McGillion: [email protected]; Sandra Lee Carroll: [email protected]; Kelly Metcalfe: [email protected]; Heather Mary Arthur: [email protected]; Joseph Charles Victor: [email protected]; Robert McKelvie: [email protected]; Etienne Marc Jolicoeur: [email protected]; Marie-Gabrielle Lessard: [email protected]; James Stone: [email protected]; Nelson Svorkdal: [email protected]; John George Hanlon: [email protected]; Ada Andrade: [email protected]; Joel Niznick: [email protected]; Louise Malysh: [email protected]; William McDonald: [email protected]; Bonnie Stevens: [email protected]; Peter Coyte: [email protected]; Dawn Stacey: [email protected] Received 2014 Feb 3; Accepted 2014 Jun 6. Copyright © 2014 McGillion et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. This article has been cited by other articles in PMC.

Abstract

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Background

Methods

Discussion

Background

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Patient decision aids

Study aims

Conceptual framework

Methods

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Phase I: Development of the decision support tool

Systematic review of the available evidence and data extraction

Needs assessment

Input from key informants

Creation of the draft decision aid

A) Information about options and outcomes

B) Presentation of probability of outcomes

C) Values clarification

D) Coaching or Guidance

E) Delivery

Review and revisions to draft decision aid

Phase 2: Pilot test 1

Sample and setting

Procedure

Phase 3: Pilot test 2 (pretest-posttest evaluation)

Primary purpose

Secondary purpose

Sample and setting

Field test procedure and outcomes

Post-field test debriefing interviews

Instrumentation: pre/posttest measures Acceptability questionnaire

Decisional conflict scale

Knowledge/comprehension test

Choice predisposition tool

Data management and analyses

Discussion

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Study status

Abbreviations

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Competing interests

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Authors’ contributions

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Acknowledgments

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References

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Articles from Health and Quality of Life Outcomes are provided here courtesy of BioMed Central

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Development of a patient decision aid for people with refractory

Health Qual Life Outcomes. 2014; 12: 93. PMCID: PMC4065088 Published online 2014 Jun 11. doi: 10.1186/1477-7525-12-93 Development of a patient deci...

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